Posted by: Bert Copple | January 7, 2008

Toll of Caregiving Widespread, Study Says

By Tina Rowley, R.N., C.S.A., from the Home Instead Senior Care office in Birmingham, Michigan.

  1. I am an 80-year-old woman who has been caring for my 85-year husband with Alzheimer’s disease for the past two years.  I love caring for my husband, but the stress is starting to get to me.  I don’t have a life anymore.  Am I alone?

No, you’re not and it’s time for you to start reaching out for support.  The recently released Evercare/National Alliance for Caregiving Study of Caregivers—What  They Spend, What They Sacrifice, reported they were spending on average 35.4 hours a week caring for their loved ones, with 19 percent providing care for more than three years and 32 percent caregiving for more than five years.

To accommodate the caregiving time and expenses they had, study respondents were making the following sacrifices:

  ● Cutting back on leisure activities (49 percent) and vacations (47 percent);
  ● Saving less or not at all for their children’s future (38 percent);
  ● Using their savings (34 percent);
  ● Cutting back on basics such as clothing, utilities or transportation (27 percent) and groceries (25 percent); and,
  ● Cutting back on personal medical or dental expenses (23 percent).

Here’s an interesting observation from a study participant that will relate to you:  “Time is the most expensive commodity I provide – but it has no price tag,” one caregiver wrote in a diary.  Despite the sacrifice, caregivers also said it was a commitment they made willingly.

Study respondents reported on the personal and emotional impact which includes:
  ● Heightened stress or anxiety (65 percent);
  ● Difficulty sleeping (49 percent);
  ● Increased financial worries (43 percent);
  ● Depression or hopelessness (37 percent), and
  ● New or worsening health problems (26 percent).

So, as you can see, others share your plight.  You need respite help to maintain your own health and sanity.  For resources and more information, contact the Alzheimer’s Association at www.alz.org.

Or call your local Home Instead Senior Care office.  The company’s non-medical CAREGivers are often employed to provide respite care to families and are specially trained to work with all types of family situations.

 For more information about Home Instead Senior Care, contact Bert Copple at 248-203-2273 or visit www.homeinstead.com.

*Information on the “Evercare/NAC Study of Caregivers: What They Spend, What They Sacrifice” is available online at  http://www.evercarehealthplans.com/pdf/Evercare_Cost_Study_11-19.pdf.

Responses

My heart aches for you. I saw my mom do the same thing.

Spousal care is not the same as other types of caregiving, and yet the toll can even be higher because of the emotional investment. My mom gave every second to my dad who suffered from heart disease, and like you, I watched her world, her joys, and her friendships dwindle.

I think it’s even harder to ask for help when it’s our spouses. It’s harder to take a break, to admit that aspects of caring for our husband or wife is “work,” and we need a break.

But you do–need help, and need a break. Stand up for yourself.

Tell guilt to take a back seat.

You won’t have anything left to give if you don’t. Resentment can turn you into an ugly person.

Taking care of yourself turns you into a beautiful, more passionate, and even a better caregiver.

I know you love him, and by loving him, love yourself.

I know it’s hard to speak up for yourself, (I’ve been married for 28 years, so I understand the committment to marriage and how we create areas of “need” that’s hard to change) but you’ve got to–your spiritual, mental, and even emotional health hangs in the balance.

Get some house help. Consider adult day care. Ask a neighbor, or a relative for a few hours of “sitting” a week. Go to the library, take a walk by a lake, take a yoga class, have lunch with a friend once a month.

Do things for you.

The sad fact is that one spouse will most likely go before the other, and the one who is left needs to have a life, and joy, and activities already in place.

~Carol D. O’Dell
author of Mothering Mother: A Daughter’s Humorous and Heartbreaking Memoir,

available on Amazon and in most bookstores.

http://www.mothering-mother.com

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